August 29, 2009

Sneak Peeks

Two kindergarten classes in two days. A "sneak peek" at what next year will look like — next year, which starts Monday. And this is the way the story unfolds: one boy will have one teacher and 22 classmates. The other boy will have one teacher, five paraeducators and 5 classmates. Both will have weekly visits from therapists.

Sam's sneak peek at his new kindergarten class was full of laughter and reading and non-stop talking. It won't be a surprise to those of you who know him or who follow here that he loved (loved!) being the center of attention as his new teacher showered him with questions. He excitedly took in where he'd sit to work, where he'd sit for circle time. He found his cubby and ran over to touch his name. He took in the posted schedule on the wall. Then he asked: "Where are the feelings?"

"Feelings?" she repeated, confused.

"I'm really good at all my feelings," he continued, pacing around the room. Finally, he spotted them on a far wall — a poster with nine faces depicting nine different emotions. "Here they are! See?"

His new teacher, Mrs. W., laughed and asked, "And what are you feeling today, Sam?"

"I am happy..." he said, following along with his finger, "...and I'm excited... and I'm also surprised."

"Surprised?" I asked. "Yes, I am surprised," he said, "It is good."

After his first look last spring, it is great.

*******************

On the way to John's sneak peek, I told Sam that it was John's turn to be the center of attention, that he needed to let everyone focus on John. I reminded him that he had had a great time the day before while John hung back with me. "Do you understand?" I asked. "Yes," he said.

As we walked in, John deftly avoided everyone who approached, turning his back to the room after finding a computer. I spoke quietly with the new teacher and met the team of paras and after ten antsy minutes of being quiet, Sam ran to a shelf of toys and said loudly, "John! They have Sesame Street books here!"

John eyed that corner of the room and eventually, slowly (lest anyone think it wasn't his own idea), made his way over. He took the book from Sam and sat down to flip through it, his other hand gripping two small cars. When done, he dropped the book and ran the perimeter, learning every surface with his free hand, until his attention was pulled to the center of the room.

Another boy, a new classmate, played with a motorized race track and every time the cars passed go, they shot through with a loud whizzzz. John approached him and began to laugh and jump. He watched the boy's movements over and over, each time more and more excited. I smiled, then laughed myself — amazed when John carefully placed the two he had been gripping on the track, trying to copy what he had seen.

It was almost more than Sam could bear, he wanted desperately to get in on this game. But he hung behind his brother and laughed and jumped too, it seemed to me with love.

*******************

In the car on the way home: "Mom, why can't John go to my school?"

I start thinking fast. "Well... John needs to go to a school where there are a lot of people who can help him learn how to do things that you already know how to do."

"Like what? What, Mommy?"

"John has something called autism." Really? Did I really say this word aloud? Like that (insert snapped fingers) it took shape and hung between us. If he repeats it back to me... what will I...

"Autism? Autism. What's autism, Mommy?"

Sh*tSh*tSh*t.
"Um, well...you know how sometimes when you ask John a question and he doesn't answer you? Sometimes autism makes it hard for some kids to talk." Oh, I'm so unprepared for this discussion, really unprepared. I look in the rear view mirror and see his worried face.

"Mommy, I think we should take John to the Talk Doctor. To make him talk." What a great idea. I wish we could end this conversation here, but no... "What happens if I get the autism and don't talk?" So many mine fields here and how do I explain any of this to a five-year-old who also may or may not be, probably is, on the autism spectrum?

"Honey, autism isn't something that you can catch, like a cold, people are born with it." At least this is what I believe, don't yell at me.

"Was I born with autism?" Yes? No? Maybe? Can I exit this conversation stage left?

"Um...well, honey. You also had a hard time with talking when you were real little, but now you talk great, you talk a lot! You've had a lot of help with talking, just like we hope John will get in his new school..." How ironic that I get to avoid eye contact right now and how happy I am about it.

And so the story concludes for now: the mom wipes her eyes and continues to drive — the subject abruptly changed to Thomas trains. She will have, for the first time in five years, a week yawning with free hours that are hers and hers alone. She sighs, afraid she will be sucked into that void just to disappear — what will she do if she's not taking care of two? In the back seat, two boys so perfectly themselves are framed together in the rear view mirror.

August 11, 2009

The Five-Year Epiphany

Dear Boys,
You are five now. Five! Today as I watched you run free through the grass and circle the house, here in one of the most lovely places on earth, I realized that for so long I have kept you tethered to me. I realized that my grip on you must loosen and give, that I must live with my fear of losing you. I know, you're still only five for pete's sake, but I must give you both room to be. Despite autism, I have to let you breathe.

Sam, you talk non-stop, it is your favorite sport. You roll words on your tongue and at times, pelt me with them. You are quite capable of making a deal. I know that when I tell you to stay close to the house where I can see you, you will (grudgingly) do it. You will parry and counter-offer, but so what. We are communicating and I know you'll stay near, stay safe.

John, for so so long, a wide open space has seemed to mean the freedom to run away from me. Or perhaps it was simply your running to something — the sound of the wind, your face upturned to the sky, squinting at the sun. Whether a parking lot or a field, you were off, oblivious to danger. And there I was, sprinting behind you, scared and trying to stop you. Knowing that I had to catch you, while panic chased me. I have never felt that you were safe if your hand was not tightly clasped in mine.

Today was so sudden, you escaped together. We pulled into the drive with a car full of groceries and after getting out, my arms full of bags, you took off. Together you took off up the yard laughing. I yelled, "Sam!" and of course you ignored me. John, you soon disappeared around the garden and behind a tree. I dropped the bags and started after you, a tight knot forming in my chest. I yelled again, "Sam! Help me find your brother!" and you were great, you did, I think sensing my urgency.

There you were, John, up at the garden, going around the perimeter studying the beautiful lines of its fence. I saw the pure joy on your face as you squinted and flapped. You did not take off down the driveway and down the street where I imagined you would. I guess that's when I started to breathe again myself, hot and sweaty from the effort but so relieved that you were still here.

I wish that you could parry with me like your brother, that I could know that you understand. But I think I'm beginning to see that you do, even if just a little bit. I'm afraid, though, that I will still always reach for your hands. My gorgeous, gorgeous boys — I love you enough to start letting go. And I realized this today, the day you turned five.